APRIL BLOG 2019
Today is the last day of our month here at the Center and the last day for a number of friends and services we have welcomed as part of our family here.Our Jackie Lee’s Thrift Shop has been a large part of the center for many years. It is volunteer managed and run with minimal management oversite. We have prided ourselves on honoring Mrs. Houston, Jackie Lee’s , name by keeping the merchandise high quality, clean and fresh just as she had always demanded when she would visit us and donate her clothing, shoes and jewelry.But, as we know having lost both the Houston’s, nothing stays the same and we move on to new challenges and new horizons.However, it is important not to forget the pillars that have supported us and made us what we are today. Jackie Lee’s thrift shop will continue under the stewardship of Angel View reopening in a bigger and better way in early May just down the street.We celebrate this partnership of two great charities both committed to services for the disabled.We hope that many of our volunteers will continue to help at the new store and that the fine reputation will live on as a great legacy to the Center. Special thanks to all the volunteers, many who have been with us as much as 18 years. Your devotion and caring has made working with you a pleasure and your contribution has been enormous. Let us only hope our paths will cross again as we all are devoted to caring for those who need our help.
APRIL 2019 NEWS IN PARKINSON’S
Journal of Parkinson’s Disease While PD has traditionally regarded as a neuromotor disorder, it is not known to be a heterogeneous multisystem disorder- in recognition of the significant impact that non-motor symptoms have on the quality of life of individuals affected by PD. Up to 57% of patients suffering from PD develop mild cognitive impairment within 5 years of their initial diagnosis and, if they survive more than 10 years, the majority will eventually develop dementia. The underlying neurophysiological mechanisms are not completely understood, but an accumulation of amyloid plaques, mitochondrial dysfunction and neurotransmitter changes are all suggested to contribute.Literature review suggests that potential of aerobic exercise to improve motor and non-motor symptoms is promising and may help to decelerate the disease progression. Journal of Parkinson’s DiseaseStudy that looked at boosting levels of a naturally occurring growth factor, Gliia Cell Line-Derived Neurotropic Factor (GDNF) can regenerate dying dopamine brain cells in patents with PD and reverse their condition. Utilizing an infusion process, after 9 months the group who received GDNF showed an improvement of 100% in a key area of the brain affected offering hope that the treatment was starting to reawaken and restore brain cells. This is a significant breakthrough because most drugs that might work cannot cross from the blood stream into the brain due to a natural protective barrier.
APRIL 19 NEWS IN DEMENTIA
Association of Mature American Citizens Surveys conducted over the past several years suggest that a diagnosis of Alzheimer’s Disease sparks terror in the hearts of patients, families and friends more so that just about any other fatal or chronic illness. In fact a Marist Poll conducted in 2012 concluded that AD was America’s most feared illness.Unfortunately, this has spurred the development of a new class of scammers who target seniors with concoctions that claim to cure or even reverse the disease.But the news is encouraging. Progress is being made in the medical community on ways to deal with the disease. For example there is work in the area of blood flow to the brain, there is work in regeneration of damaged neurons using a drug cocktail working on glial cells. University of WaterlooChallenges of dementia diagnosis can be compounded by feeling of isolation and loneliness when families and friends stop visiting because they don’t know what to say or do. This social isolation has negative health outcomes including depression.Experts recommend that you try not to make assumptions about what they can and cannot do. Too often control is taken away from a person once they have a diagnosis of dementia. Patients should be involved in decisions where possible. They should be treated with dignity and respect. Many people are suggesting we shift our languet=e to say a person is living with dementia rather than suffering from dementia. We need to learn to accommodate the individual’s change in perception instead of asking them to navigate our world and do things the way they used to do.
April 2019 NEWS IN STROKE
American College of Cardiology New guidelines are being issued for the use of aspirin. While evidence exists that aspirin can prevent heart attacks and stroke, it is known to cause heavy bleeding. Because of this, its use is recommended only sparingly. Aspirin should be limited to people at highest risk of CV disease and a very low risk of bleeding. Those without known CV disease should concentrate on optimizing lifestyle habits and control blood pressure and cholesterol as opposed to taking aspirin.
MARCH BLOG 2019
A couple of years ago we made a decision based on research into the treatment of neurological disorders. We decided that our style, methods and philosophy of care practiced for many years here at the then Stroke Recovery Center would be of value in helping those who suffer from other chronic issues of the brain and the nervous system. We opened our arms to bring in more people who had diagnosis that fell on the neuro spectrum and have started new programs for Parkinson’s, MS and other related disorders. We amended our name to the Neuro Vitality Center to signal the inclusion we want to promote to all those who might benefit from our programs. The success of the new programs has been remarkable. The difference we make is visible in the steps, the smiles, the voices of those we serve. Working with each person, building on their strengths, giving them the dignity and the respect they deserve and providing the tools to help regain confidence and agency makes all the difference. Our next step has to be to expand our services even further in neurological care. We are carefully researching the most current treatments and philosophies of care and believe that we can make a difference for those diagnosed with Alzheimer’s and Dementia by introducing them into our person centered environment, listening to each patient and working in the same comprehensive manner we have to help so many that have come through our doors. There are a number of things that will have to happen before we are able to do our best for this population – changes to the physical plant and our wonderful garden that will be occurring in the next few months. For those of you who follow the monthly news synopsis that we offer on this site, we will add Alzheimer’s and Dementia at the end of March so you can start to monitor new treatments and current thinking about these problems. Treatment and care are changing with the gathering of more and more information and we hope to be a part of the development of new and more effective modalities to ease the burden of these problems. We are seeking help to make our dreams a reality – we are asking for those who can help us to lend their names to the garden, to the building , to the treatment rooms or just be a part of the stream of donors who flow through our hallways and doors. Learn more as we announce the new plans and show you more on the web site and on our facebook page. The next generation of help will be even better here at the Neuro Vitality Center.
COMPASSIONATE, EFFECTIVE, AFFORDABLE CARE